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The Care-for-Rare foundation was founded so that children suffering from rare diseases can gain quicker access to modern genetic diagnoses and innovative therapeutic methods. As opposed to other humanitarian initiatives the Care-for-Rare Foundation is unique in that it combines giving children with rare diseases the care they need, with research aimed at understanding the underlying processes behind the diseases and so allowing for the development of new treatments.

The Care-for-Rare Foundation works together with an international network of doctors and researchers. Currently the Care-for-Rare Foundation is primarily supporting clinical research into diseases of the blood and the immune system. Modern genetic research on rare diseases will hopefully yield insights into the general biological principles behind the diseases. This knowledge will serve not only to help patients with rare diseases, but will also enable a new understanding of the underlying principles behind frequent diseases, as well as the development of new treatments in the context of personalised and individualised medical treatments.