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Terms of Use / Data Protection

The Care-for-Rare Foundation is a legally recognised foundation constituted under German civil law.


Main Office:

Berblingerstraße 31
D-88471 Laupheim
Telefon: +49(0)7392-964911
Telefax : +49(0)7392-9649-29

Administrative Office:

Direktion der Kinderklinik
Dr. von Hauner´sches Kinderspital

Lindwurmstraße 4
D-80337 München
Telefon: +49 (0) 89-4400-57700
Telefax: +49 (0) 89-4400-57702


Foundation Representatives:

Prof. Dr. Dr. med. Christoph Klein
Prof. Dr. jur. Andreas Staudacher

Relevant Supervisory Board:

Regierungspräsidium Tübingen
Konrad-Adenauer-Straße 20
D-72072 Tübingen

The Care-for-Rare Foundation for children with rare diseases is solely used for charitable purposes in the interest of the public according to the terms and conditions of German civil law, (51.ff AO) and belongs to the bodies, estates and associations of individuals as defined by German civil law (5. Abs. 1 Nr. 9 KStG).

German Tax Number: 88041/00409


Liability Note

The information on this website belongs to the Care-for-Rare Foundation. The information is the most up-to-date information available at the time of publishing. The Care-for-Rare Foundation is not liable for, and makes no guarantee of, how current, valid or complete the above provided information and data are. This also applies to all other websites accessible by hyperlink from this website. The Care-for-Rare Foundation is also not responsible for the content of these websites. The information provided by these websites does not, by any means, provide legally binding assurances.

The Care-for-Rare Foundation maintains the right, to change or amend any of the provided information and data at any time. No legal claims can be made on the material and content of the website. All proposals are non-binding.

The Care-for-Rare Foundation is not responsible for any direct or indirect damages causes by the use of data or information provided by the website. No legal rights or obligations exist between the Care-for-Rare Foundation and website users or third persons.

The content of the Care-for-Rare Foundation’s website is protected by copyright. The content of the website, whether it be the whole content or only a part of it, may not be used, duplicated, published or saved in any kind of information database without the explicit written consent of the website’s authors beforehand.

All information and data, their use, as well as all things done, tolerated and refrained from connected to the Care-for-Rare Foundation is subject to German law, and not subject to international law. Any legal proceedings would initially take place in the court in Ulm/Donau.


Data Protection

Data avoidance and data economy are our highest goals when dealing with personal data, which arise during the operation of our web offer.

This website uses SSL encryption to protect the transmission of all data and content (e.g. requests to the person responsible). You can recognize an encrypted connection by the character string "https://" and the lock symbol in your browser line.

When you visit our website, certain data is recorded by our technical operator of the website, over which we have no influence. These are in detail the IP address, calling page, accessed page, date, time, amount of data transferred, status data (transmission ok or error code), browser and operating system of the calling page.

This information can usually not be traced back to you as a person and we will not attempt to do so.

Our website does not use cookies or Flash and can be used without active content. The only exception is the technical check cookie "has_js", which is deleted at the end of each session and a few pages on which we have included videos (see below).

We do not use tracking programs.

If you contact us by e-mail, we will use your data exclusively for the purpose you have formulated. The data is then deleted. A deletion is also carried out at any other time if you wish.

During the storage of your personal data for the purpose requested by you (e.g. provision of information), we take the necessary technical and organizational measures to ensure its appropriate protection.

Links to third party websites

To supplement the information provided, these websites contain links to websites of third parties which we consider useful. The operators are solely responsible for their availability and content. We have checked the links for safety when they were created and will repeat this check at regular intervals. Nevertheless, we cannot assume any liability for content and availability.

Integrated Videos


Plugins of the video portal Vimeo of Vimeo, LLC, 555 West 18th Street, New York 10011, USA are integrated on a few pages on our website. When you access a page of our website that contains such a plugin, your browser establishes a direct connection to Vimeo's servers. The content of the plugin is transmitted by Vimeo directly to your browser and integrated into the page. By this integration Vimeo receives the information that your browser has called up the corresponding page of our website, even if you do not have a Vimeo account or are not currently logged in to Vimeo. This information (including your IP address) is transmitted directly from your browser to a Vimeo server in the USA and stored there.

If you are logged in to Vimeo, Vimeo can immediately associate your visit to our website with your Vimeo account. If you interact with the plugins (such as pressing the start button of a video), this information is also transmitted directly to a Vimeo server and stored there.

The described data processing operations are carried out according to § 6 par. 1f DSGVO on the basis of Vimeo's justified interest in market research and the demand-oriented design of the service.

If you do not want Vimeo to associate the information collected through our website directly with your Vimeo account, you must log out of Vimeo before visiting our website.

Please refer to Vimeo's privacy policy for the purpose and scope of data collection and the further processing and use of the data by Vimeo and your rights and setting options for protecting your privacy:

The tracking tool Google Analytics is automatically integrated in videos from Vimeo that are integrated on our site. This is Vimeo's own tracking system, to which we have no access and which cannot be influenced by our site. Google Analytics uses "cookies", which are text files placed on your computer, to help the website analyze how users use the site. The information generated by the cookie about your use of this website is usually transferred to a Google server in the USA and stored there.

This processing is based on Vimeo's legitimate interest in statistical analysis of user behavior for optimization and marketing purposes.


Our website includes plugins of the video portal "YouTube", which belongs to Google LLC, 1600 Amphitheatre Parkway, Mountain View, CA 94043, USA ("Google").

We use the data protection mode which, according to the provider, does not initiate the storage of user information until the video(s) are played. When clicking on embedded YouTube videos, the provider "YouTube" uses cookies to collect information about user behavior.

According to information from "YouTube", these serve, among other things, to collect video statistics and improve user-friendliness. If you are logged in to Google, your information will be directly associated with your account when you click on a video. If you do not want this assignment, you must log out of YouTube before clicking on the button. Google saves your data as usage profiles and evaluates them even if you are not logged in. This evaluation is based on Google's interest in the insertion of personalized advertising, market research and/or demand-oriented design of its website. You can object to the creation of these user profiles on YouTube.

Further information on data protection at "YouTube" can be found in the provider's data protection declaration at:



Your Contact:

Dr. Albrecht Matthaei

Tel: + 49 89 4400-57982
Fax: +49 89 4400-57702