Our team
We stand together for the orphans of medicine
Professor Dr. med. Dr. sci. nat. Christoph Klein heads the Clinic and Polyclinic for Pediatrics and Adolescent Medicine at Dr. von Hauner’s Children’s Hospital at Ludwig Maximilians University in Munich. His team does research on the fundamentals of rare diseases of the blood and immune system and drives the development of new therapeutic options. In 2010, Prof. Klein became the first pediatrician to receive the Gottfried Wilhelm Leibniz Prize, considered the most important research funding award in Germany. He also received several international awards.
Prof. Dr. jur. Andreas Staudacher is a specialist lawyer for administrative law as well as for construction and architectural law. He is the owner of a law firm in Laupheim, Baden-Württemberg, and teaches at Biberach University.
The board of directors is advised and controlled by the board of trustees and the scientific advisory board. The members of the foundation’s board of directors, the board of trustees and the scientific advisory board work on an honorary basis.
Team
Professor Dr. med. Dr. sci. nat. Christoph Klein
Director
Prof. Dr. jur. Andreas Staudacher
Director & Managing Director Care-for-Rare gGmbH
Petra Thollembeek
Managing Director
Marola Seiwert
Assistant Director & Managing Director
Katharina Weier
Foundation Development & Solidarity Coach
Marion Metzner
Foundation Development & Solidarity Coach
Milos Ilic
Projectmanagement
Beatrice Walden
Projectmanagement
Katharina Bauer
PR-Management
Stephan Hoffstadt
Social Media & Content Creator
Board of trustees
Renowned representatives of public life support the Care-for-Rare Foundation.
Dr. Thomas Jaschke
Chair of the Board of Trustees
Gütersloh, arvato Bertelsmann
Prof. Dr. med. Harald zur Hausen
Heidelberg, winner of the Nobel Prize for Medicine 2008
† 2023
Prof. Dr. theol. Josef Sayer
Former Managing Director Misereor (until 2012)
Dr. Martin C. Ney
Former ambassador of the Federal Republic of Germany (India, Portugal, Cape Verde)
Prof. Bruce Beutler M.D.
Dallas, winner of the Nobel Prize for Medicine 2011
Prof. Dr. med. Josef Penninger
Helmholtz Centre for Infection Research, Braunschweig,
Medical University of Vienna
Hubert Thaler
Munich, CEO Werner Reichenberger Stiftung
Patron
Annette Schavan
The long-time former German Federal Minister of Education and Research has taken over the patronage of the Care-for-Rare Foundation.
Scientific advisory board
Prof. Matthew Porteus
Professor of pediatrics with a focus on oncology at Stanford Medical School, California
Prof. Porteus’ research program focuses on the development of genome editing for the treatment of children with genetic diseases and to better understand childhood leukemias.
Prof. Scott Snapper
Professor of Gastroenterology, Children’s Hospital Boston, Harvard Medical School
Professor Snapper studies the mechanisms of immunity and tolerance in the intestinal tract.
For children with rare diseases
