We help children with rare diseases.
Children with rare diseases are the orphans of medicine. They are overshadowed in many ways: odysseys from doctor to doctor and frequent misdiagnoses define their lives. Many rare diseases are still incurable. Only through increased research efforts and international cooperation can this fate be changed. The Care-for-Rare Foundation helps across national borders to give children with rare diseases hope for a cure – regardless of their origin or financial means.
Prof. Dr. Dr. Christoph Klein
Prof. Dr. Andreas Staudacher
About us
Care-for-Rare Foundation was founded to allow children with rare diseases fast access to modern genetic diagnostics and innovative therapies.
Our work
Recognize – understand – cure: In accordance with these guiding principles, Care-for-Rare Foundation’s work is committed to disseminate knowledge about rare diseases, to foster research and to cure patients.
Donate & support
Please help us with your donation and support our projects in favor of children with rare diseases! Every donation counts and benefits our projects directly and without deduction.
LATEST NEWS FROM
THE CARE-FOR-RARE FOUNDATION
Award of the 11th Dr. Holger Müller Preis: Dr. Lena-Luise Becker honored for research work
8th Care-for-Rare Science Award goes to bioinformatician Gianluca Santamaria
4th International Klaus Betke Symposium
CARE-FOR-RARE:
FOUNDATION FOR CHILDREN WITH RARE DISEASES
They are the orphans of medicine: children with rare diseases. Many of these diseases are still unknown, and research into them is long and costly. Rare diseases represent one of the greatest challenges of pediatric medicine in the 21st century.
The Care-for-Rare Foundation conducts projects in five funding lines to turn around the fortunes of these children.
A DISEASE IS CONSIDERED RARE IF LESS THAN 1 IN 2,000 PEOPLE ARE AFFECTED. A LARGE PROPORTION OF THOSE AFFECTED ARE CHILDREN.
For 95% of rare diseases, there is no tested and approved medication yet.
About 8.000 rare diseases are known to date.
More than 80% of rare diseases have genetic causes.
About 4 million German citizens have a rare disease.
OUR FIVE FUNDING LINES
The Care-for-Rare Academy supports further education through short- and long-term training courses.
In individual cases Care-for-Rare Aid helps young patients facing acute emergencies with financial assistance.
The international Care-for-Rare Alliance unites physicians and scientists from many institutions and countries in our joint mission to investigate the causes of rare diseases and develop new treatments for them.
The Care-for-Rare Awards honor outstanding scientists who have already achieved success in the research of rare diseases.
Care-for-Rare Awareness supports campaigns that focus public attention on children with rare diseases and sensitize medical staff to their unique needs. This should lead to more rapid and precise diagnoses and treatments.
Learn more about the Care-for-Rare Foundation
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