About us: The Care-for-Rare Foundation

Children with rare diseases are the orphans of medicine.

Their diseases are so rare that the little patients do not receive the necessary attention from society, politics and the pharmaceutical industry that they would need in order to be cured. The Care-for-Rare Foundation was founded in 2009 out of science and medicine to change that: Children with rare diseases must have faster access to modern genetic diagnostics and innovative therapies! In a unique way, the foundation combines the care for seriously ill children with the high demand to understand the basics of disease pathomechanisms through scientific research with the ultimate goal to develop new therapies through these findings.

The Care-for-Rare Foundation works globally and cooperates with an international network of physicians and scientists. Clinical research is currently supported with a special focus on diseases of the blood and the immune system. Thanks to modern genetic research on rare diseases, insights into general biological principles are to be gained. This knowledge not only serves patients with rare diseases, but also opens up new approaches to understanding the fundamentals of common diseases as well as to developing new therapies in the sense of personalized medicine.

For children with rare diseases