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Dezember 2023 — Our latest film about the genome research funded by the Care-for-Rare Foundation aims to give children with rare diseases around the world hope for a cure. For this film, we reunited with Sarah, one of the many
We show the scientist in the research building Kubus of the Comprehensive Childhood Research Center and introduce our current fellows: Chonlatis Srichumpuang from Chulalongkorn University in Bangkok specializes in haemophilia and congenital blood clotting disorders (thrombophilia), which can lead to strokes
11.05.2023 — Gene identified and new therapy developed for young patient with rare disease: Dr. Lena-Luise Becker receives Dr. Holger Müller Preis 2022 Esslingen. A decisive contribution to the research and therapy of rare vascular diseases was made by Dr.
In a festive setting and with guests from science, society and politics, the presentation of the Care-for-Rare Science Award 2021, which had to be cancelled last year due to corona, was made up for on October 20. Since 2013, the
March 2023 — As part of an international event series, the Dr. von Hauner Children’s Hospital of the Ludwig-Maximilians-Universität (LMU) organises the Klaus Betke Symposium every two years to draw attention to the importance of rare diseases and personalized therapies