We help children with rare diseases Since its foundation, Care-for-Rare has already achieved many milestones, but we still have a long and challenging journey ahead of us. Please support us on our journey! We are grateful for every single contribution.
The Child Life Specialist Program at Dr. von Hauner Children’s Hospital
Child Life Specialists – for comprehensive child-centered care in the pediatric clinic When sick children have to leave the security of their families to be treated in a clinic, their vulnerability becomes particularly clear. Children with life-threatening, complex, rare diseases
Scivias Study: New Directions in Diagnostics and Prevention
November 2020 — Almost 900 years ago, Hildegard von Bingen coined the idea that the eye is the window to the human soul. Care-for-Rare is transferring this ancient wisdom into an innovative study to find out which previously unnoticed signs
Get healthy by playing – Child Life Tech Specialists
September 2021 — When sick children are treated in a clinic, their vulnerability becomes particularly clear. Often, young patients do not understand exactly what happens to them during a medical intervention, how treatment methods are selected and what consequences a
Fighting together against pediatric cancer
Clara* is a happy child. She plays with her little brother in the garden, and likes soccer best of all. The other day she suddenly felt nauseous, today she suddenly can’t see properly and walking is difficult for her. The
Long-Covid: Special outpatient clinic at Munich University Children’s Hospitals
The corona pandemic poses new challenges for the health care system and also for pediatric medicine. Currently, it is also the “Long-COVID” syndrome that puzzles doctors and scientists and causes suffering in an increasing number of children. Little is known
Extension of the sequencing platform
Please continue to help us! Thanks to grants raised, the Care-for-Rare Foundation is covering a large portion of the laboratory and maintenance costs associated with sequencing that are not covered by health insurance. We thank you for your support. Donate
Please support the funding line Alliance
Network excellence worldwide The international Care-for-Rare Alliance unites physicians and scientists in many institutions and countries in their joint mission: to understand the causes of rare diseases and to develop novel therapeutic strategies. The flagship of these activities is centered
Please support the funding line Academy
Progress through knowledge The Care-for-Rare Academy Program aims to help young doctors and scientists acquire skills in the interdisciplinary care of sick children. Under the motto “Allow time for thinking” the Foundation awards study grants and funds further education of
Please support the funding line Awareness
More awareness for the orphans of medicine With the funding line Awareness, the Foundation wants to raise wider public awareness of the concerns and needs of children with rare diseases. Since most people, who are not directly confronted with the