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Progress through knowledge The Care-for-Rare Academy program supports physicians and scientists worldwide in expanding their knowledge of rare diseases. The foundation awards congress fellowships and enables talented young scientists to spend research periods in renowned centers of excellence. One focus
The corona pandemic poses new challenges for the health care system and also for pediatric medicine. Currently, it is also the “Long-COVID” syndrome that puzzles doctors and scientists and causes suffering in an increasing number of children. Little is known
Clara* is a happy child. She plays with her little brother in the garden, and likes soccer best of all. The other day she suddenly felt nauseous, today she suddenly can’t see properly and walking is difficult for her. The
Please continue to help us! Thanks to grants raised, the Care-for-Rare Foundation is covering a large portion of the laboratory and maintenance costs associated with sequencing that are not covered by health insurance. We thank you for your support. Donate
November 2020 — Almost 900 years ago, Hildegard von Bingen coined the idea that the eye is the window to the human soul. Care-for-Rare is transferring this ancient wisdom into an innovative study to find out which previously unnoticed signs
Child Life Specialists – for comprehensive child-centered care in the pediatric clinic When sick children have to leave the security of their families to be treated in a clinic, their vulnerability becomes particularly clear. Children with life-threatening, complex, rare diseases
September 2021 — When sick children are treated in a clinic, their vulnerability becomes particularly clear. Often, young patients do not understand exactly what happens to them during a medical intervention, how treatment methods are selected and what consequences a