Good, comprehensive and child-friendly clinical care for children with serious, complex and rare diseases is increasingly at risk in Germany. Even in renowned and traditional children’s hospitals, the situation is worsening from year to year. The Care-for-Rare Foundation is therefore
Latest film on genome research
Dezember 2023 — Our latest film about the genome research funded by the Care-for-Rare Foundation aims to give children with rare diseases around the world hope for a cure. For this film, we reunited with Sarah, one of the many
Who does research at Dr. von Hauner Children’s Hospital? Our current fellows
We show the scientist in the research building Kubus of the Comprehensive Childhood Research Center and introduce our current fellows: Chonlatis Srichumpuang from Chulalongkorn University in Bangkok specializes in haemophilia and congenital blood clotting disorders (thrombophilia), which can lead to strokes
International Care-for-Rare IBD Alliance for children with inflammatory bowel disease
Following the discovery of the first patients with a defect in the interleukin-10 receptor, the Care-for-Rare Foundation has started to help children with severe inflammatory bowel disease worldwide. Together with renowned doctors and scientists in the USA, Canada, Great Britain
Please support the Care-for-Rare Foundation in general
We help children with rare diseases Since its foundation, Care-for-Rare has already achieved many milestones, but we still have a long and challenging journey ahead of us. Please support us on our journey! We are grateful for every single contribution.
The Child Life Specialist Program at Dr. von Hauner Children’s Hospital
Child Life Specialists – for comprehensive child-centered care in the pediatric clinic When sick children have to leave the security of their families to be treated in a clinic, their vulnerability becomes particularly clear. Children with life-threatening, complex, rare diseases
Scivias Study: New Directions in Diagnostics and Prevention
November 2020 — Almost 900 years ago, Hildegard von Bingen coined the idea that the eye is the window to the human soul. Care-for-Rare is transferring this ancient wisdom into an innovative study to find out which previously unnoticed signs
Get healthy by playing – Child Life Tech Specialists
September 2021 — When sick children are treated in a clinic, their vulnerability becomes particularly clear. Often, young patients do not understand exactly what happens to them during a medical intervention, how treatment methods are selected and what consequences a
Fighting together against pediatric cancer
Clara* is a happy child. She plays with her little brother in the garden, and likes soccer best of all. The other day she suddenly felt nauseous, today she suddenly can’t see properly and walking is difficult for her. The
Long-Covid: Special outpatient clinic at Munich University Children’s Hospitals
The corona pandemic poses new challenges for the health care system and also for pediatric medicine. Currently, it is also the “Long-COVID” syndrome that puzzles doctors and scientists and causes suffering in an increasing number of children. Little is known