Please continue to help us! Thanks to grants raised, the Care-for-Rare Foundation is covering a large portion of the laboratory and maintenance costs associated with sequencing that are not covered by health insurance. We thank you for your support. Donate
Please support the funding line Alliance
Network excellence worldwide The international Care-for-Rare Alliance unites physicians and scientists in many institutions and countries in their joint mission: to understand the causes of rare diseases and to develop novel therapeutic strategies. The flagship of these activities is centered
Please support the funding line Academy
Progress through knowledge The Care-for-Rare Academy Program aims to help young doctors and scientists acquire skills in the interdisciplinary care of sick children. Under the motto “Allow time for thinking” the Foundation awards study grants and funds further education of
Please support the funding line Awareness
More awareness for the orphans of medicine With the funding line Awareness, the Foundation wants to raise wider public awareness of the concerns and needs of children with rare diseases. Since most people, who are not directly confronted with the
Please support the funding line Aid
Global help for children with rare diseases In individual cases Care-for-Rare Aid helps young patients facing acute emergencies with financial assistance. For this reason, we regularly collect donations in order to grant children life-saving access to modern medicine – in situations not
Please support the funding line Awards
Awarded commitment The Care-for-Rare Foundation annually awards two prices on rare diseases in children: the Care-for-Rare Science Award and the Dr. Holger Müller Prize. The competitive prizes motivate younger scientists to devote more time to research into rare diseases. Would
Award of the 11th Dr. Holger Müller Preis: Dr. Lena-Luise Becker honored for research work
11.05.2023 — Gene identified and new therapy developed for young patient with rare disease: Dr. Lena-Luise Becker receives Dr. Holger Müller Preis 2022 Esslingen. A decisive contribution to the research and therapy of rare vascular diseases was made by Dr.
8th Care-for-Rare Science Award goes to bioinformatician Gianluca Santamaria
In a festive setting and with guests from science, society and politics, the presentation of the Care-for-Rare Science Award 2021, which had to be cancelled last year due to corona, was made up for on October 20. Since 2013, the
German-Thai alliance for better care of children with rare diseases
In order to raise awareness of rare diseases in Southeast Asia, the Care-for-Rare Foundation together with Chulalongkorn University Bangkok initiated a “German-Thai Alliance for Better Care of Children with Rare Diseases”. For this purpose, Care-for-Rare organized the first international “European
Amira’s story
For children with severe bowel diseases Amira holds a PhD in molecular biology and has won several science awards in Algeria. Her research focuses on severe early infantile bowel diseases (VEO-IBD). Her goal is to explore the genetic causes of